CC Community News Digest (June 8-14)

Assorted news from the last week:

In a new study led by Yale Cancer Center researchers, neuromuscular dysfunction is found to be prevalent in long-term childhood cancer survivors, continues to increase post-therapy, and is associated with adverse health and socioeconomic outcomes. The findings were published in the journal Cancer, Epidemiology, Biomarkers & Prevention.

Research suggests that children with average risk medulloblastoma can receive radiation to a smaller volume of the brain at the end of a six-week course of treatment and still maintain the same disease control as those receiving radiation to a larger area. But the dose of preventive radiation treatments given to the whole brain and spine over the six-week regimen cannot be reduced without reducing survival.

Upcoming Webinars and Online Opportunities:

Join us for the 2021 CAC2 Annual Summit, a robust virtual meeting to unite CAC2 members and guests to advance our work for the childhood cancer community:  Thursday, June 24th noon – 5:00 pm ET and Friday, June 25th noon – 4:00 pm EDT.  Register here.  Read more about the Summit here.

ACCELERATE will host the 2^nd episode of their webinar series Orphan Drug Regulations on June 29 at 11:00 EDT.  It will include topics such as

• How does the orphan medicines regulation work in EU, US and Japan?
• How did it impact the field of rare diseases? What are the issues now in Research & Development?
• The oncology paradox: Why did the current adult-based approach not work for childhood cancers? How can we improve the situation to better target the ‘young patients’ needs?

Both in-person and virtual CureFest registration is now open!  Make your plans for September 25-26.