| Name of Organization | EveryLife Foundation for Rare Diseases |
|---|---|
| Name of Scholarship | #RAREis Scholarship |
| Website Link | everylifefoundation.org |
| Contact Details/Notes: | Contact Stephanie Riordan, Associate Director of Patient Programs, at . |
| Applicant Type Details | Anyone 17 or older, who is a resident of the United States and who has been diagnosed by a physician as having any form of rare disease, regardless of treatment status. |
| Childhood Cancer Patients | YES |
| Childhood Cancer Survivors | YES |
| Applicant Criteria | Applicants must plan to enroll full-time or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational-technical/trade school for the Fall 2023 semester. There is no minimum amount of credit hours to be part-time. Students do not need to be pursuing an undergraduate or graduate degree. |
| Award Amount | $5,000 |
| Awardee Announcement | Summer |
| Awardee Requirements | Applicants will be encouraged to share their rare disease story with the EveryLife Foundation for Rare Diseases and Horizon Therapeutics, but this is not required. |
| To Apply | pplicants will be asked to provide a Diagnosis Verification Form provided by a physician verifying diagnosis. Undiagnosed applicants may apply with a completed Diagnosis Verification Form by a physician. ou must answer the essay question. In 2022, the question was: “How will your education and career goals help you become an advocate for the rare disease community?”, (2,000 characters maximum, which is approx. 350-400 words). If you would like assistance counting your characters, click here. The 2023 question will be announced once the application is open. |
| Application Due Date | April |
| Additional Information | Opens in March. A Spanish Diagnosis Verification Form is also available. A disease is defined as rare when it affects fewer than 200,000 people in the United States. If you are unsure if your disease is rare, please refer to The National Institute of Health and the Genetic and Rare Diseases Information Center. and/or NORD |