All posts tagged: Funding Research

CAC2 Member Blog–Perhaps one day, we can all say hello to the cure. ~The Meo Family

May 27, 2024
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By CAC2 Member Matt Meo (Hello Cure) Our family is yet another childhood cancer family. Our son, Landon Meo, was diagnosed with medulloblastoma on March 25th, 2021 and passed away on December 17, 2022 at the age of 10 and 1/2. Landon always said his wish is that “no kid EVER” have cancer. Like many parents, we found ourselves asking, “What can we do to help?” We frequently saw parents share their child’s story on Facebook and Instagram pages. Many had thousands of followers. Even the ones with smaller followings had a circle of people who genuinely cared about them.  […]

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CAC2 Webinar–Hearing Loss from Cisplatin—Multiple Perspectives on the New FDA Preventative Treatment Option

December 1, 2022
CAC2 News, Webinars No comments yet
Children who receive cisplatin as part of their cancer treatment are at risk for progressive and/or permanent hearing loss as a result of their treatment.  This treatment effect can influence speech and language development, educational achievement, and social-emotional development.  Recently, the FDA approved Pedmark, a Sodium Thiosulfate Injection created by Fennec Pharmaceuticals, as a treatment to help reduce the risk of ototoxicity associated with cisplatin.  November’s CAC2 All-Member webinar provided key information about this important breakthrough in improving the quality of life for childhood cancer survivors who received cisplatin. Attendees learned about the importance of this specific drug approval, the [...] Read more

CAC2 Member Blog–Thankful and Fearful

November 21, 2022
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By CAC2 Individual Member Joe Baber Because of my grandson, Conor, a neuroblastoma survivor, I have met so many people in our childhood cancer community who want to improve the outcomes of children fighting cancer. We either have children in treatment for cancer or have children who are survivors or have died because of it.  We’re all thankful when there are lifesaving therapies and at the very same time, we are fearful of relapse, side effects of the drugs, chemotherapy, radiation, surgery and even death.  These contrary and parallel emotions seem to be linked in partnership throughout the childhood cancer […]

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CAC2 Webinar–Why Foundations Should Collaborate to Fund Research and How the Foundation Match Platform Can Help

July 22, 2022
CAC2 News, Webinars No comments yet
As Foundation Match makes its debut, this webinar gave an opportunity to learn more about the platform. In addition, a moderated discussion explored a few of the different motives and approaches that CAC2 member organizations that co-fund research adopted and learned from an investigator about how funding collaboration has the potential to improve the research landscape. Panelists shared why they are excited to join the Foundation Match platform. Panel members include: Donna Ludwinski (Solving Kids’ Cancer) Lisa Ward (Tough2gether Against DIPG/DMG) Julie Guillot (Leukemia & Lymphoma Society Volunteer) Elias Sayour, MD, PhD (Associate Professor of Neurosurgery and Pediatrics, Principal Investigator, [...] Read more

CAC2 Member Blog–Joint-Funding Initiative for Ewing Sarcoma

May 17, 2021
Blog Posts, Collaborative Achievements, Member Blogs No comments yet
By CAC2 Member Sarah Bartosz, Beat Childhood Cancer This collaborative research effort was due in part to childhood cancer groups coming together as part of CAC2. Nearly one year ago, Gold In September (G9) joined forces with Beat Nb to become Beat Childhood Cancer, a single organization building research infrastructure, funding precision medicine, and growing the conversation to champion gold awareness. With belief in parent impact as a driving force, the expanded Beat Childhood Cancer organization has forged a new collaboration with other CAC2 members. In an effort to find novel ways to support precision medicine efforts, The Spada Pediatric [...] Read more

CAC2 Webinar–Funding Research: Discussion on Charity Practices

February 10, 2016
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The CAC2 Research Interest Group February meeting was an interactive webinar to encourage dialogue between our members about aspects of charities funding research.  CAC2 Member Jay Scott from Alex's Lemonade Sand Foundation led an open conversation about our experiences, ideas, and practices. Jay and members on the call discussed the elements of funding research and shared experience, ideas, and best practices: setting priorities soliciting proposals selecting scientific review panels orchestrating reviews selection of projects making awards reporting requirements evaluating research funded collaboration among charities https://youtu.be/M940GmSWtO4 Read more

CAC2 Webinar–Lynne Davies, ICRP Funded Research Data Base Project–SLIDE DECK

August 14, 2015
Webinars No comments yet
The August All-Member call was dedicated to learning more about the International Cancer Research Partnership (ICRP) Database, of which CAC2 will soon be a part.  The ICRP houses over 63,000 research projects that are uniformly coded and have a searchable interface (ICRPartnership.org).  Lynne Davies, the Operations Manager at ICRP, joined us from the UK; she started the call by reviewing the goals of the ICRP, membership advantages and details about uploading funded research projects.  Like CAC2, ICRP is a member-centric organization constantly seeking and evaluation the needs of its members, including enhancing the coding system in order for members to [...] Read more
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