AWARENESS

The general public doesn’t realize the magnitude of problems faced by children and adolescents with cancer and those who survive their cancers.  The Awareness Interest Group seeks to shine the spotlight on facts, such as:

  • Childhood cancer is the leading cause of death by disease among children and adolescents in the United States.
  • Most causes of childhood cancer are unknown and not preventable.
  • The incidence of childhood cancer is on the increase.
  • Most survivors will experience significant debilitating complications that result from their treatment regimes.
  • Children and adolescents who have or have had cancer are much more likely (more than 60%) to face bullying than their healthy classmates.
  • Only four drugs have been developed and approved to treat a pediatric cancer in the last quarter century.

CAC2 member organizations with an interest in Awareness are encouraged to participate in the work of the CAC2 Advocacy and Awareness Interest Group. Notes from the 2019 meeting of the working group are available here. Email if you would like more information on how to be involved with CAC2 awareness initiatives.

Raising awareness is crucial to increasing research funds and legislative efficacy.
Collaborating amplifies our impact.

Latest CAC2 and Community News

CAC2 Webinar–Hearing Loss from Cisplatin—Multiple Perspectives on the New FDA Preventative Treatment Option

Children who receive cisplatin as part of their cancer treatment are at risk for progressive and/or permanent hearing loss as a result of their treatment.  This treatment effect can influence speech and language development, educational achievement, and social-emotional development.  Recently, ...
Read More

CAC2 Childhood Cancer Community News Digest (November 21-27)

Assorted News from the Last Week: CAC2 Member Mary Beth Collins explains the importance of the new FDA approval of Pedmark:  "With the FDA’s recent approval of Pedmark (an injectable formulation of sodium thiosulfate ("STS"), children are protected from cisplatin’s ototoxicity.  This ...
Read More

Survivorship Matters Blog: Pedmark – Improving Quality of Life for Childhood Cancer Survivors Preventing Chemo-Induced Hearing Loss

Survivorship Matters Blog By CAC2 Individual Member Mary Beth Collins “Your child has to be alive to experience side effects” It is heard by every parent of a child with a high-risk pediatric cancer when reviewing treatment protocol: your child ...
Read More