CAC2 Childhood Cancer Community News Digest (May 2-8)

Assorted News from Last Week: The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers. Recently, CCDI launched the CCDI Data Catalog web application, part of the CCDI Data Ecosystem. Adolescent and young adult (AYA) cancer survivors have a significantly increased risk for developing a […]

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Guest Blog–National Cancer Institute Launches the CCDI Childhood Cancer Data Catalog

The Childhood Cancer Data Catalog is a searchable database of National Cancer Institute and other pediatric cancer resources and is part of NCI’s Childhood Cancer Data Initiative (CCDI), which is building a community centered around childhood cancer care and research data.  Through enhanced data sharing, investigators can improve understanding of cancer biology, preventive measures, treatment, quality of life, and survivorship, as well as ensure that researchers learn from every child with cancer. Recently, CCDI launched the CCDI Data Catalog web application, part of the CCDI Data Ecosystem.  The CCDI Childhood Cancer Data Catalog is an inventory of pediatric oncology data resources, [...] Read more

CAC2 Childhood Cancer Community News Digest (April 25-May 1)

Assorted News from Last Week: The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers. The Alliance for Childhood Cancer sends its thanks for a fantastic Action Day on April 28!  Nearly 300 advocates from 39 states and Washington, DC participated and attended almost 200 […]

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CAC2 News–Great.com Interviews Coalition Against Childhood Cancer About A Future Without Childhood Cancers

Danielle Riberio from Great.com interviewed Coalition Against Childhood Cancer as part of their ‘Great.com Talks With…’ podcast. This series is an antidote to negative news stories that aims to shed light on organizations and experts whose work is making a positive impact on the world. Families affected by childhood cancer face untold challenges. From having to sacrifice work to paying huge medical bills, only a small number of families can afford to make these sacrifices. For the vast majority that cannot, life can be extremely difficult for both patient and family members. In this episode, Danielle talked with Vickie Buenger, […]

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Community News–Congress Introduces the Childhood Cancer STAR Reauthorization Act

During last week’s Childhood Cancer Action Day, legislation to reauthorize the Childhood Cancer STAR Act was introduced in both chambers of Congress! The original STAR Act was signed into law in 2018 after unprecedented support from our community.  It authorized five years of funding at $30 million annually from 2019-2023.  Also, thanks to the community’s efforts the STAR Act has subsequently received those expected appropriations of $30 million each year.  The STAR Act represents important bipartisan legislation designed to advance pediatric cancer research and child-focused cancer treatments, while also improving childhood cancer surveillance and providing enhanced resources for survivors. On April […]

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Community News–Childhood Cancer Advocates Support Successful 2022 Action Day!

The Alliance for Childhood Cancer sends its thanks for a fantastic Action Day on April 28!  Nearly 300 advocates from 39 states and Washington, DC participated and attended almost 200 meetings sharing their stories and asking for congressional support for important legislation and funding for childhood cancer.  CAC2 members, Alliance members, and many others across the country had their voices heard. This year’s top line asks: We urge Congress to provide significant funding increases for the National Institutes of Health (NIH) and National Cancer Institute (NCI) and to fully support childhood cancer programs, including providing $30 million to fully fund […]

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CAC2 Childhood Cancer Community News Digest (April 18-24)

Assorted News from Last Week: The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers. The Alliance for Childhood Cancer will hold its 11th Annual Childhood Cancer Action Days on Thursday, April 28. This virtual event brings our community together to advocate for important childhood […]

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CAC2 Childhood Cancer Community News Digest (April 11-17)

Assorted News from Last Week: The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers. Why is investing in drugs to treat rare diseases an attractive investment for drug companies? A compendium on CAR-T Cell Therapy from the National Cancer Institute. Methionine restriction may improve […]

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CAC2 Childhood Cancer Community News Digest (March 28-April 10)

Assorted News from Last Week: The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers. The Research to Accelerate Cures and Equity (RACE) Act led to an increase in required pediatric studies for recently approved cancer therapies within the first year of the act’s implementation, […]

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CAC2 Childhood Cancer Community News Digest (March 21-27)

Assorted News from Last Week: Cancer survivors have increasingly advocated for research into the long-term effects of their treatment.  Read more about that perspective from post doctoral research scientist and long-term childhood leukemia survivor, Victoria J. Forster. Treatment for glioma has long relied on MRI imaging to track tumor markers and treatment response. But new findings suggest a new method could provide additional data about tumor markers before changes appear on an MRI, indicating possible strategies to help clinicians address this aggressive form of cancer. Scientists have identified variants in two genes that are associated with accelerated aging in childhood […]

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