CAC2 Childhood Cancer Community News Digest (June 17-23)

June 24, 2024 Community News, News Digest

Assorted News from the Last Week:

CAC2 Supporting Organization Member Day One Biopharmaceuticals announced it has entered into an exclusive licensing agreement with MabCare Therapeutics for MTX-13, a novel antibody drug conjugate (ADC) targeting protein-tyrosine kinase 7 (PTK7) which is overexpressed in in neuroblastoma, rhabdomyosarcoma and osteosarcoma in children, as well as esophageal, ovarian, lung and endometrial cancers among adults.

Blinatumomab (Blincyto; Amgen) received FDA approval for the treatment of adult and pediatric patients with CD19-positive Philadelphia chromosome-negative B-cell precursor acute lymphoblastic leukemia (B-ALL).

FDA grants rare paediatric disease designation to Race Oncology’s RC220 bisantrene for the treatment of pediatric subtypes of AML.

According to a Swedish study collecting data since 1958, “If you’ve had cancer as a child or adolescent, you have an increased risk of almost all diagnoses in the future.”

‘Vigilant surveillance’ detects asymptomatic tumors in children predisposed to cancer.

A study of parents of children with cancer, who face significant financial and psychological burdens, and employ metaphors to convey their distinctive experiences and inner realms.

Trametinib can produce responses in children with relapsed or refractory juvenile myelomonocytic leukemia (JMML).

Upcoming Webinars, Online Opportunities, and Meetings:

Join Camp Erin for a two-day photography virtual event to explore the use of photography as a unique form of grief expression. Attendees will learn basic photography skills and incorporate the use of imagery in expressing thoughts and feelings difficult to share in words. This online event will serve teens and young adults grieving the death of a significant person in their lives.  Second  evenings:  June 29. For information and to register.

Lori Krause will lead Healing Hearts Wellness Workshops Wednesday from 7- 8PM ET  June 26. Participants will learn techniques to better manage stress and moods and learn new practices to stay healthy, embrace new experiences and thrive while living with loss and grief. For information and to register.

Triage Cancer is presenting a webinar for caregivers on June 27, 2024 at 1:00 ET.  Learn about the rights of caregivers at work, how to replace lost wages while acting as a caregiver, and practical tips to support caregivers. We’ll also talk about community resources available to caregivers. For information and to register.

The 21st International Symposium on Pediatric Neuro-Oncology (ISPNO 2024) from June 29 – July 2, 2024, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) from June 28-29, 2024, which will take place in Philadelphia, PA.  For information and to register.

56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

U.S. Senators Bob Casey (D-PA) and Markwayne Mullin (R-OK), introduced the Creating Hope Reauthorization Act to ensure that pharmaceutical companies continue to develop drugs to treat rare diseases affecting children, including types of cancer. The bipartisan legislation would extend the Food and Drug Administration’s (FDA) Rare Pediatric Disease Priority Review Voucher (PRV) program, which incentivizes drugmakers to create these novel treatments by bringing them on the market on an expedited timeline.

Past Recordings

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

Take Action:

Try out the monthly donation platform dedicated to childhood cancer that helps nonprofits and warrior-parents team up to raise money for research, family support, and advocacy offered at no charge by Hello Cure. 

CAC2 Member the Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.

CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details.  Click here for the IRB Approval document.

CAC2 Innovation Council Recommendation: ArtVsCancer

Overview of the Opportunity: ArtVsCancer is a public Facebook group where AI artists create free custom art for childhood cancer patients and other children with life threatening diseases.

The Requester: Arthur van Vugt, Dutch childhood psychologist

The Type of Request: Information Sharing

The Ask: Inform parents about the existence of the group

Supporting Documentation:

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