Currently browsing: Blog Posts

An Estimate of the Long-Term Outcomes for Children with Cancer

September 18, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger CAC2 Member Bob Piniewski (People Against Childhood Cancer) Childhood cancer statistics, like all statistics (1), can be confusing. Any statistic can be used to hide or distort the truth, and even the statistics we trust may only tell part of the story. This essay analyzes some familiar [...]

September 9 Virtual Day of Action: How to Get Involved

September 9, 2020 CAC2 Community News, Guest Blogs No comments yet

By Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation Today is the day! The childhood cancer community is joining together today to use our collective voice to build support for funding for the Childhood Cancer STAR Act, [...]

Virtual Day of Action: Join Together on September 9

August 28, 2020 CAC2 Community News, Guest Blogs No comments yet

By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation For nearly 10 years, childhood cancer advocates from around the country have come to Washington, D.C. to participate in the Childhood Cancer Action Days. Action Days [...]

Lessons Learned from a Childhood Cancer Survivor

August 8, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger, CAC2 Member Mariah Forster Olson (Neuroblastoma Children's Cancer Society) As a long-term childhood cancer survivor with numerous late effects, I have had 39 years of experience in the medical field…as a patient. As many of us know, life consists of doctor appointments, blood work, diagnostic tests, procedures, [...]

Childhood Cancer and Prevention – The Time is Now

July 29, 2020 CAC2 Survivorship Matters Blog No comments yet

Survivorship Matters Blog By CAC2 Member Mary Beth Collins My introduction to the idea of prevention and childhood cancer didn’t come from a yearning for advocacy and systems change. It also didn’t come years after my son was diagnosed, with a desire to help other parents learn how to nurture [...]

Joining Forces to Bring New Therapies to Children with Cancer

July 26, 2020 CAC2 Collaborative Achievements, Member Blogs No comments yet

By Guest Blogger, CAC2 Member Cesare Spadoni (aPODD). “Pharma and biotech companies do not develop drugs for kids with cancer!” How many times have we heard these words within the childhood cancer community? Over the past several decades we have witnessed unprecedented progress in oncology, with an array of [...]

New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

July 11, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger, CAC2 Member Jonathan Agin (Max Cure Foundation) I frequently speak of viewing childhood cancer like a bicycle wheel with multiple spokes emanating from the hub in the center. Each spoke represents a problem or area of focus: drug development, psychosocial care, early detection, survivorship, research funding, access to treatment, [...]

Kids First Second Chance: Engaging the Community in Fostering Pediatric Genomics Research

March 2, 2020 CAC2 Guest Blogs No comments yet

By Guest blogger Valerie Cotton, Kids First Program Manager, NICHD Childhood cancers and structural birth defects have profound, lifelong effects on children and their families. Birth defects are the leading cause of death in the first year of life, and cancer remains the leading cause of childhood disease-related mortality beyond [...]

#Moonshot4Kids

March 1, 2020 CAC2 Member Blogs No comments yet

CAC2 Member blogger Janet Demeter (Jack's Angels) Did you know that brain cancer is the leading cause of death in children with cancer? It’s also one of the least-funded areas of cancer research. DIPG, diffuse intrinsic pontine glioma, is perhaps the deadliest of them all. The experience of DIPG is [...]

Except for Tissue

February 29, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger, CAC2 Student Member Nikki Lyons I always knew I wanted to be a scientist. This meant that when I was younger, I loved watching movies and shows featuring some scientific aspect. Their endless supplies of anything they could possibly need, the sparks of brilliance and the immediacy […]

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Currently browsing: Blog Posts

An Estimate of the Long-Term Outcomes for Children with Cancer

September 9 Virtual Day of Action: How to Get Involved

Virtual Day of Action: Join Together on September 9

Lessons Learned from a Childhood Cancer Survivor

Childhood Cancer and Prevention – The Time is Now

Joining Forces to Bring New Therapies to Children with Cancer

New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

Kids First Second Chance: Engaging the Community in Fostering Pediatric Genomics Research

#Moonshot4Kids

Except for Tissue

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