All posts tagged: Best Practices

CC Community News Digest (week of September 28-October 4)

Assorted news from the last week: Twenty percent of children treated with drugs called anthracyclines go on to suffer heart failure later in life.  Dr. Greg Aune explores why. Research to develop a new treatment and bring a new drug to market is extremely expensive, and conventional methods for obtaining funding aren’t adequate. New funding models can help disease-focused nonprofit research foundations play a central role in raising capital and mobilizing an ecosystem focused on controlling and curing a disease. The U.S. Senate unanimously passed S.Res.742 – A Senate Resolution designating September as National Childhood Cancer Awareness Month.  Senators Manchin […]

Read more

Coping with COVID-19: An Informative Conversation for Families in the Childhood Cancer Community

CAC2 salutes Members Solving Kids' Cancer, Momcology, Ty Louis Campbell Foundation, and the Max Cure Foundation who worked collaboratively with Friends of Karen to host an expert-led community discussion for families about Covid-19. Watch the presentation by clicking the image below or by visiting www.solvingkidscancer.org/covid19webinar . The community is invited view the presentation of a timely and informative community discussion related to COVID-19 as we approach the fall season and the many changes (besides the beauty of autumn) that are on the horizon.  Covered topics include What science is saying about COVID-19 in children and vulnerable childhood cancer patients What can [...] Read more

CAC2 Member Guide to Navigating Covid19

If you want to know what the $2.2 trillion CARES Act economic relief package means for nonprofits, donors, and individuals, have asked yourself "what can I do?" want to brush up your leadership skills or explore ideas to help with fundraising in a crisis, or just need accurate and reliable information, then the CAC2 Member Guide to Navigating the Covid-19 crisis may help.  Members have worked together to build this document to help organizational and individual members during this unprecedented crisis.     If we have overlooked an essential resource, let us know here:  Suggest a Resource for the Guide.   You [...] Read more

How Patient Driven Philanthropy is Driving Collaboration and Progress

In February’s All-Member webinar, CAC2 members Joanne Salcido (Pediatric Brain Tumor Foundation) hosted Kristin Schneeman, Director of Programs at FasterCures, a center of the Milken Institute. Philanthropy can play an critical role as a catalyst for change in the medical research and development ecosystem. Over the last decade, many patient-driven foundations – big and small, old and new – have been taking a more strategic and entrepreneurial approach to their role as research funders and are driving collaboration and progress for the patients they represent. In this webinar, Schneeman,presented about some of the new funding models and collaborative activities in which foundations [...] Read more

An Individualized Approach Requires Collaborative Efforts

By Vickie Buenger, President of Coalition Against Childhood Cancer The Coalition Against Childhood Cancer (CAC2) held its first pediatric cancer research conference entitled From Bench to Bedside and Beyond to connect childhood cancer advocates, research funders, clinicians, and scientists from academia and industry. A number of common themes emerged from the various investigators’ presentations. Clearly, most childhood cancers are different than adult cancers, and the relatively small numbers of patients present problems for researchers, sponsors, and others responsible for designing clinical trials. We must remember that these small clusters of patients represent our children. Presenters also agreed that despite progress [...] Read more

Funding Research: Discussion on Charity Practices

The CAC2 Research Interest Group February meeting was an interactive webinar to encourage dialogue between our members about aspects of charities funding research.  CAC2 Member Jay Scott from Alex's Lemonade Sand Foundation led an open conversation about our experiences, ideas, and practices. Jay and members on the call discussed the elements of funding research and shared experience, ideas, and best practices: setting priorities soliciting proposals selecting scientific review panels orchestrating reviews selection of projects making awards reporting requirements evaluating research funded collaboration among charities Read more

Funding Research: Discussion on Charity Practices

The CAC2 Research Interest Group February meeting was an interactive webinar to encourage dialogue between our members about aspects of charities funding research.  CAC2 Member Jay Scott from Alex’s Lemonade Sand Foundation led an open conversation about our experiences, ideas, and practices. Jay and members on the call discussed the elements of funding research and shared experience, ideas, and best practices: setting priorities soliciting proposals selecting scientific review panels orchestrating reviews selection of projects making awards reporting requirements evaluating research funded collaboration among charities  

Read more

Scientific Meetings: Tapping the Resource

The CAC2 Research Interest Group February meeting was a webinar to help all of our members get the most out of this fall's research conference and any other research conferences they may have the opportunity to attend.  Attending scientific meetings is a fantastic opportunity for advocates and funders of pediatric cancer research.  CAC2 member Donna Ludwinski (Solving Kids Cancer), presented our January webinar as a primer to help you navigate these types of opportunities: Topics covered included getting the most out of​ scientific meetings list of major meetings of interest planning objectives networking reporting sponsorship Additionally, CAC2 member Phil Renna (Christina Renna Foundation, Inc.) updated everyone on our CAC2 Research Conference planned for this [...] Read more

Successful Collaboration: Leveraging an Established Grant Review Process

This collaborative research effort was due to childhood cancer groups coming together as part of CAC2. When the founders of Florida-based I Care I Cure Childhood Cancer Foundation approached Jay and Liz Scott of Alex’s Lemonade Stand Foundation at one of the early C3U (now CAC2) meetings, it was the beginning of a productive and fruitful collaboration that has increased the reach of both organizations’ grantmaking. Alex’s Lemonade Stand Foundation (ALSF) has a successful track record of funding cutting-edge medical research – more than 350 projects since 2006. To identify and select the best projects, ALSF has assembled a Scientific [...] Read more