All posts tagged: Awareness

Taking Childhood Cancer Advocacy on the Road: Childhood Cancer License Plates

By Guest Blogger CAC2 Member Mary Beth Collins, PREP4Gold For the entire month of September the world hears a great deal from the childhood cancer community, feverishly raising awareness, advocating for programs & funding, and sharing stories about treatment, survivorship, and bereavement. Social media posts are in abundance, medical experts and advocates are interviewed, and researchers publish papers with the latest data. Each day of the month, there is a great deal provided about childhood cancer as Childhood Cancer Awareness Month (CCAM) continues to strengthen in message and resolve. Come October 1st, some wonder what can be done to sustain [...] Read more

CureFest for Childhood Cancer

CureFest 2021 will take place in a hybrid format this September. There will be an in-person event in Washington, DC as well as an interactive virtual format that will allow families from across the world to hold One Voice Walks and other activities in their own communities. ​2020’s virtual-only format allowed us to reach many families that would otherwise be unable to attend CureFest in person. Based on this success, we made the decision to offer a virtual experience in 2021 even though we will have an in-person presence this year in our Nation’s Capital. CureFest for Childhood Cancer will […]

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An Estimate of the Long-Term Outcomes for Children with Cancer

By Guest Blogger CAC2 Member Bob Piniewski (People Against Childhood Cancer) Childhood cancer statistics, like all statistics (1), can be confusing.   Any statistic can be used to hide or distort the truth, and even the statistics we trust may only tell part of the story. This essay analyzes some familiar childhood cancer statistics and attempts to draw them together in a holistic way to estimate the projected lifelong outcomes for a child diagnosed with childhood cancer in the United States today.  By lifelong outcomes, we mean what may happen over that child’s entire life--not just today or in five years, [...] Read more

CC Community News Digest (week of September 7-13)

Assorted news from the last week: Camp Okizu at Berry Creek, a camp for pediatric cancer patients and their families, sustained significant damage in California's Bear Fire. Early results of a clinical trial show that for children and adults with advanced soft tissue sarcoma, adding the targeted drug pazopanib (Votrient) to chemotherapy and radiation treatment is safe and increases the chances that most of the tumor will be dead before surgery. Study in Pediatric Blood Cancer concludes that physicians can foster trust through patient-centered communication and provision of high-quality information about a child’s cancer. Baltimore Ravens honor pediatric cancer patients. [...] Read more

CC Community News Digest (week of August 31-September 6)

Assorted news from the last week: National Cancer Institute released its Annual Plan and Budget Proposal for Fiscal Year 2022.  This plan focuses on our enduring top priority — accelerating cancer research — and features four special scientific topics: cancer drug resistance, molecular diagnostics for cancer treatment, obesity and cancer, and cancer survivorship. Major League Soccer and Continental Tire teamed to raise awareness and funds for childhood cancer with the 7th year of the Kick Childhood Cancer campaign. Major League Baseball devoted Saturday, September 5 to childhood cancer activities around the league.  Players wore gold ribbon decals and wristbands, and teams [...] Read more

An Ounce of Prevention, A Lifetime of Health: Childhood Cancer Prevention Initiative

Dr. Margaret Kripke, Professor of Immunology and Vivian L. Smith Chair Emerita at the University of Texas M.D. Anderson Cancer Center and Dr. Philip Landrigan, Professor of Biology at Boston College and Director of the Program for Global Public Health and the Common Good joined CAC2 Members Jonathan Agin (Max Cure Foundation), Mary Beth Collins, and Anne Robertson to discuss a soon-to-be unveiled childhood cancer prevention initiative. This informative webinar allowed CAC2 members to learn the basics about preventing childhood cancer and the vulnerabilities to environmental toxins and current treatment regimens experienced by children. The panel discussion provided an overview about [...] Read more

Childhood Cancer and Prevention – The Time is Now

Survivorship Matters Blog By CAC2 Member Mary Beth Collins My introduction to the idea of prevention and childhood cancer didn’t come from a yearning for advocacy and systems change. It also didn’t come years after my son was diagnosed, with a desire to help other parents learn how to nurture healthier environments for their children. It was thrust upon me during my son’s neuroblastoma treatment, by prospective buyers of our house. Somehow, they not only found out that my son was in cancer treatment, but they also found out the type of cancer he had. The couple had researched environmental toxins [...] Read more

New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

By Guest Blogger, CAC2 Member Jonathan Agin (Max Cure Foundation) I frequently speak of viewing childhood cancer like a bicycle wheel with multiple spokes emanating from the hub in the center.  Each spoke represents a problem or area of focus:  drug development, psychosocial care, early detection, survivorship, research funding, access to treatment, financial toxicity.  Etc., etc.  The spokes of the childhood cancer wheel are interwoven.  Participating in groups like CAC2 allows us to see how interconnected everything in childhood cancer really is. With that said, one area has not truly been intertwined with the other spokes.  This is the issue of prevention, and specifically, prevention of [...] Read more

The Canine-Kid Connection — SLIDE DECK

In this All-Member Webinar for November 2016, we provided an overview of the compelling case for studying and treating cancer in canine cancer patients – a model of spontaneously occurring disease - the underlying science, and its potential not only to help us better understand and treat pediatric cancer, but also to accelerate the pediatric cancer drug development process. CAC2 Member Ulrike Szalay of Canines -N-Kids explains:  "As we know too well, cancer is the #1 cause of disease-related death in children in most developed countries. At least 1 in 5 will die from their disease, while the vast majority [...] Read more

Three Words I Heard from my Pediatric Oncologist that Still Haunt Me

This guest blog post comes to us from CAC2 Member Kayla Funk, a childhood cancer survivor who went on to found an organization called Open Hands Overflowing Hearts, which funds pediatric cancer research. Kayla and her organization will be attending the upcoming CAC2 research conference at CSHL.  The entry first appeared on the Cold Spring Harbor Laboratory blog http://labdish.cshl.edu/ Kayla Funk wheeling her belongings out after a stay in the hospital. The world stopped spinning for a moment. Time beyond the oncology clinic stood still. Though I knew he was right, I refused to believe my doctor and the words coming out of his mouth. […]

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