Advocacy – CAC2

Community News–Update on Federal Childhood Cancer Appropriations Process

July 28, 2023 CAC2

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Update from our colleagues at the Alliance for Childhood Cancer (July 28, 2023): The Senate Appropriations Committee has released its Fiscal Year 2024 Labor-HHS Appropriations bill, and we are excited to report that it included language to fully fund the Childhood Cancer STAR Act and the Childhood Cancer Data Initiative again this year. If you are interested in the details you can find the report language that specifies our Labor-HHS funding priorities is available here. We still have more work to do heading into the fall to make sure our priorities remain in next year’s budget, but the inclusion of STAR and […]

Make Your Voice Heard Alliance for Childhood Cancer Action Days 2023

March 9, 2023 CAC2

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We learned more about the Alliance for Childhood Cancer Action Days, which is returning to Washington, D.C., this year for the first time since 2019. Action Days allows you to speak with your members of Congress and their staff to advocate for important childhood cancer issues before Congress. Sharing your story will ensure the voice of kids with cancer is heard loud and clear on Capitol Hill. Click here for more information about Action Days April 24-25, 2023. Make Your Voice Heard PowerPoint Sarah Milberg Sarah Milberg is the Director of Government Relations and Advocacy for the St. Baldrick's Foundation, [...] Read more

Pediatric Cancer Advocacy – From Your Own Backyard

February 15, 2023 CAC2

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Many think of advocacy as traveling to Washington DC and speaking to their Senators and members of Congress, convincing them to pass legislation like the STAR Act. While this is an essential part of advocacy, there are many things that you can do within your state that do not involve travel or engaging politicians. Ann Ramer presented opportunities for connecting with your local Childhood Cancer Community and highlighted the available tools on the CAC2 member page to support your effort. Ann Ramer, MPH Ann is a mother of four children, two of whom developed multiple forms of cancer. She is [...] Read more

CAC2 Member Blog–Celebrating the Introduction of The Comprehensive Cancer Survivorship Act

December 19, 2022 CAC2

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By CAC2 Member Jess Kean, Children's Cancer Cause. The Comprehensive Cancer Survivorship Act was introduced in Congress on December 14, 2022. As the only childhood cancer organization involved in the drafting of this legislation, CAC2 Member Children's Cancer Cause is pleased to share the details of this bill with other CAC2 members in the hopes that the community will join us as we work toward its passage. The Comprehensive Cancer Survivorship Act addresses care planning, transition, navigation, reimbursement, quality, and so much more. It aims to address gaps in survivorship care and develop desperately needed standards to improve the overall [...] Read more

Thankful and Fearful

November 21, 2022 CAC2

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By CAC2 Individual Member Joe Baber Because of my grandson, Conor, a neuroblastoma survivor, I have met so many people in our childhood cancer community who want to improve the outcomes of children fighting cancer. We either have children in treatment for cancer or have children who are survivors or have died because of it. We’re all thankful when there are lifesaving therapies and at the very same time, we are fearful of relapse, side effects of the drugs, chemotherapy, radiation, surgery and even death. These contrary and parallel emotions seem to be linked in partnership throughout the childhood cancer […]

Guest Blog–National Cancer Institute Expands Molecular Characterization Initiative for Childhood Cancer Research

June 29, 2022 CAC2

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The National Cancer Institute’s new Molecular Characterization Initiative (MCI) fosters data sharing in childhood cancer research. The program is expanding comprehensive molecular characterization of tumors to children, adolescents, and young adults (AYAs) with newly diagnosed soft tissue sarcomas receiving care at hospitals affiliated with the Children’s Oncology Group. The DNA and RNA in participants’ tumors are analyzed through this voluntary, free program. This effort is in addition to the previous cohort that targeted the molecular characterization of newly diagnosed central nervous system tumors in children and AYA patients. Participants’ tumor and blood samples are analyzed in an accredited lab, with […]

Community News–Congress Introduces the Childhood Cancer STAR Reauthorization Act

May 1, 2022 CAC2

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During last week’s Childhood Cancer Action Day, legislation to reauthorize the Childhood Cancer STAR Act was introduced in both chambers of Congress! The original STAR Act was signed into law in 2018 after unprecedented support from our community. It authorized five years of funding at $30 million annually from 2019-2023. Also, thanks to the community’s efforts the STAR Act has subsequently received those expected appropriations of $30 million each year. The STAR Act represents important bipartisan legislation designed to advance pediatric cancer research and child-focused cancer treatments, while also improving childhood cancer surveillance and providing enhanced resources for survivors. On April […]

Guest Blog–National Cancer Institute Launches Molecular Characterization Initiative for Childhood Cancer Research

March 23, 2022 CAC2

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The National Cancer Institute’s new Molecular Characterization Initiative (MCI) fosters data sharing in childhood cancer research. The program currently offers comprehensive molecular characterization of tumors to children, adolescents, and young adults (AYAs) with newly diagnosed central nervous system tumors receiving care at hospitals affiliated with the Children’s Oncology Group. The DNA and RNA in participants’ tumors are analyzed through this voluntary, free program. Participants’ tumor and blood samples are analyzed in an accredited lab, with results shared with families and doctors within 21 days. This detailed information about the cancer can be used to make a more precise diagnosis, […]

Childhood Cancer Prevention Day

February 14, 2022 altitude

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A one-day advocacy campaign spotlighting the importance of childhood cancer prevention. 2022 theme: Prevention Matters. Find Social Media Toolkit on event page.

11th Annual Childhood Cancer Action Days

February 9, 2022 CAC2

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You’re invited to join the Alliance for Childhood Cancer for the 11th Annual Childhood Cancer Action Days. This virtual event brings our community together to advocate for important childhood cancer issues currently before Congress.

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