Advocacy – CAC2

Don’t let HOPE die in the US Senate!

November 16, 2020 CAC2 Community News, Member Blogs No comments yet

By Guest Blogger CAC2 Member Joe Baber If the Creating Hope Act (S. 4010) does not pass the Senate by December 11, THIS YEAR we will lose the best tool we have ever had to inspire drug developers to produce Childhood Cancer and Rare Pediatric Disease drugs. This bill has produced 26 drugs in the last eight years, [...]

September 9 Virtual Day of Action: How to Get Involved

September 9, 2020 CAC2 Community News, Guest Blogs No comments yet

By Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation Today is the day! The childhood cancer community is joining together today to use our collective voice to build support for funding for the Childhood Cancer STAR Act, [...]

CC Community News Digest (week of August 24-30)

August 30, 2020 CAC2 Community News No comments yet

Assorted news from the last week: Cancer and its treatment may accelerate the aging process in young patients Research has identified a small molecule compound that may make some medulloblastoma patients respond better to treatment Childhood Cancer virtual Action Day planned for September 9 Chadwick Boseman, who died of cancer [...]

Virtual Day of Action: Join Together on September 9

August 28, 2020 CAC2 Community News, Guest Blogs No comments yet

By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation For nearly 10 years, childhood cancer advocates from around the country have come to Washington, D.C. to participate in the Childhood Cancer Action Days. Action Days [...]

Rally for Medical Research, 2020

August 23, 2020 CAC2 Community News No comments yet

Rally for Medical Research, 2020, an annual AACR advocacy event, will take place as a completely virtual event! Schedule of Events Thursday, September 10 1:00 pm – 2:00 pm EDT Virtual Training for all Rally Hill Day Participants Wednesday, September 16 5:30 pm – 6:30 pm EDT Virtual Reception to [...]

An Ounce of Prevention, A Lifetime of Health: Childhood Cancer Prevention Initiative

August 19, 2020 CAC2 Webinars No comments yet

Dr. Margaret Kripke, Professor of Immunology and Vivian L. Smith Chair Emerita at the University of Texas M.D. Anderson Cancer Center and Dr. Philip Landrigan, Professor of Biology at Boston College and Director of the Program for Global Public Health and the Common Good joined CAC2 Members Jonathan Agin (Max Cure [...]

Childhood Cancer and Prevention – The Time is Now

July 29, 2020 CAC2 Survivorship Matters Blog No comments yet

Survivorship Matters Blog By CAC2 Member Mary Beth Collins My introduction to the idea of prevention and childhood cancer didn’t come from a yearning for advocacy and systems change. It also didn’t come years after my son was diagnosed, with a desire to help other parents learn how to nurture [...]

Update on Federal Childhood Cancer Appropriations Process

July 15, 2020 CAC2 Community News No comments yet

Update from our colleagues at the Alliance for Childhood Cancer (July 13, 2020): The House Appropriations Committee agreed to fully fund the Childhood Cancer STAR Act and the Childhood Cancer Data Initiative again this year. Notably, the Senate has historically championed our cause for STAR funding, so this development in [...]

AACR Sponsored Listening Session with FDA

May 27, 2020 CAC2 Community News No comments yet

The American Association for Cancer Research (AACR) and the U.S. Food and Drug Administration (FDA) recorded a listening session on May 27, 2020 for patient advocates to learn more about cancer clinical trials during COVID-19. The session is about 45 minutes, with the pediatric questions at about minute 25.5, minute […]

#Moonshot4Kids

March 1, 2020 CAC2 Member Blogs No comments yet

CAC2 Member blogger Janet Demeter (Jack's Angels) Did you know that brain cancer is the leading cause of death in children with cancer? It’s also one of the least-funded areas of cancer research. DIPG, diffuse intrinsic pontine glioma, is perhaps the deadliest of them all. The experience of DIPG is [...]

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