CAC2 Childhood Cancer Community News Digest (May 6-12)

May 13, 2024 Community News, News Digest

Assorted News from the Last Week:

To understand how CNS tumors impact the AYA population, NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare CNS Tumors), the Central Brain Tumor Registry of the United States (CBTRUS), and the American Brain Tumor Association (ABTA) have partnered on a new statistical report that explores statistical trends in AYAs with primary CNS tumors in the United States between 2016 and 2020. (NCI)

Among adults previously treated for a childhood cancer who attained full-time employment 25 years following successful treatment, nearly 30% to 40% either died, became unemployed, or moved to part-time employment or left the labor force within the subsequent decade. (JAMA Network)

A study of the feasibility of functional precision medicine for guiding treatment of relapsed or refractory pediatric cancers.

A recent report published by the UK’s Teenage Cancer Trust has discovered that patients aged between 13 and 24 are missing out on potentially life-extending clinical trials due to stringent age restrictions which mean they are often overlooked for both paediatric trials and adult trials. Although paediatric trials can include participants up to 18 and adult trials can include participants aged 18 and older, participants aged between 13 and 24 years remain underrepresented in both categories. (Clinical Trials Arena)

While absolute numbers remain very low, colon cancer rates in teens have tripled over the last two decades. (Fortune)

Children conceived by IVF have no overall increased risk of childhood cancer, according to a large study of over 8.5 million children, 260,000 of whom had been born using medically assisted reproduction. But children born after fresh embryo transfer may have a higher risk of leukemia than children born naturally, and children born after frozen embryo transfer may have a higher risk of acute lymphoblastic leukemia (ALL) than children born naturally. (Cosmos)

Upcoming Webinars, Online Opportunities, and Meetings:

Join Rebecca Katz, culinary innovator, and Natalie Crittendon, Occupational Therapist, for a discussion on all things nutrition as relates to illness on May 31, from 1:00-2:00 ET.  For information and to register.

Register for the Making It Better at the 7th Annual FACTOR Conference in June 20-22, 2024—an intimate gathering shaping the future of osteosarcoma care. Connect with more than 60 dedicated doctors and researchers, resilient patients and families, and insightful scientific panels in thoughtful discussions, shared experiences, with a touch of fun.  For information and to register.

The 21st International Symposium on Pediatric Neuro-Oncology (ISPNO 2024) from June 29 – July 2, 2024, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) from June 28-29, 2024, which will take place in Philadelphia, PA.  For information and to register.

56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Take Action:

The Facebook group ArtVsCancer has hundreds of artists, who create free custom art for children with a life-threatening illness. We have helped many individual patients and are collaborating with Kristen King, the Manager of Child Life at Memorial Health Dwaine & Cynthia Willett Children’s Hospital of Savannah.  For information and to learn more check out the link to some of the children and their custom art https://www.facebook.com/groups/artvscancer/announcements.

CAC2 Member Cancer Help Desk provides expert cancer navigation to anyone from anywhere.

Announcing a new Childhood Cancer Data Initiative (CCDI)–related Request for Proposals (RFP). The RFP invites proposals from organizations able to perform molecular profiling using specimens from children, adolescents, and young adults with cancer. Submissions will be accepted until 3:00 p.m. ET on June 14, 2024.

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