Assorted News from the Last Week:
Scientists have found that group 3 and 4 medulloblastoma arise from the rhombic lip, knowledge that may help improve research models and therapeutic development.
Research based on a little-explored part of RNA, which creates proteins, may help to identify Group 4 medulloblastomas –the most common malignant brain tumor in children — from more aggressive Group 3 tumors.
Upcoming Webinars, Online Opportunities, and Meetings:
“Mental Health and the Childhood Cancer Journey—A Panel Discussion”. This panel shares insights into the lives of those who have been touched by childhood cancer, whether they be a parent, survivor, or clinician. They discuss dealing with emotions, learning to be vulnerable, finding the strength to fight, figuring out how to cope together, and much more. September 26.
On September 29th from 3:00-5:00 ET, join the NIH Common Fund’s Gabriella Miller Kids First Pediatric Research Program (Kids First) for their fall webinar to hear updates on the program and latest research findings from Kids First investigators. Registration Link.
Day One will share findings from their recent research on Pharma Engagement with Pediatric Cancer Non-Profit Organizations on October 4 at noon ET. Registration Link.
CureSearch Pediatric Early Development Symposium: Leveraging Big Data to Advance Pediatric Clinical Trials, on October 12-14. Details and Registration Link.
Recordings of Recent Past Events:
The White House Office of Science and Technology Policy (OSTP) hosts a forum in recognition of National Childhood Cancer Awareness Month on Friday, September 23rd. This convening brought together patients, caretakers, oncologists, and administration officials, who provides updates on progress of several key initiatives and served as an important opportunity for the community to make their voices heard. Watch the recording.
NCI recently hosted a webinar offering a comprehensive update on implementation activities related to the research provisions in the Childhood Cancer STAR Act, which included updates on biospecimen collection and biobanking activities and on survivorship research and reporting activities. Watch the recording.
CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):
- Erin Stern (Camp Casco)
Children’s Cancer Cause hosted a virtual externally-led Patient-Focused Drug Development (PFDD) meeting on Reducing Cardiac Late Effects in Pediatric Cancer Survivors, on September 15, 2022. Watch the recording.
Building on the #CancelChildhoodCancer campaign from 2021, CAC2 will be sharing childhood cancer facts and information on our social media channels using facts from the Childhood Cancer Fact Library. You can access graphics here. The bottom left corner of each image has been left open for you to add your organization’s logo. Be sure to use #GoldStrong and #CancelChildhoodCancer when sharing these posts to amplify the messaging.
From our friends in the DIPG community: Please help us make history for children with cancer and push H. Res. 404 over the finish line. https://dipgadvocacy.org/…/2022/09/0-Sept15_22Congress.pdf
The Communication Team at the Childhood Cancer Data Initiative is hoping to identify personal stories from the patient/caregiver/survivor perspective to feature in their monthly newsletter debuting next month. Each month the CCDI progress update will include three stories of people in the childhood cancer community that either relate directly to childhood cancer data sharing or allow them to highlight a need that CCDI would help meet. Please email Vickie at of you have a story or would like more information.
PBTF’s Survivorship Resource Guidebook has more information and tools to help your family navigate life after treatment ends. Download or request a copy today: http://www.curethekids.org/survivorship-guidebook
Treat House is partnering with B+ for Childhood Cancer Awareness Month! This month only, $5 from all ‘Kids Packs’ purchased will be donated to B+ to fight childhood cancer! Shop today at TreatHouse.com/BePositive
Mystic Force Foundation is giving you the best reason to indulge in a dozen (or two) Krispy Kreme doughnuts. September is National Childhood Cancer Awareness Month, and we have teamed up with Krispy Kreme! 40% of your order will be donated back to Mystic Force Foundation when you purchase via our fundraising sales page during the entire month of September!!
- CAC2 Webinar–Hearing Loss from Cisplatin—Multiple Perspectives on the New FDA Preventative Treatment Option
- CAC2 Childhood Cancer Community News Digest (November 21-27)
- Survivorship Matters Blog: Pedmark – Improving Quality of Life for Childhood Cancer Survivors Preventing Chemo-Induced Hearing Loss
- CAC2 Childhood Cancer Community News Digest (November 14-20)
- Thankful and Fearful