Assorted news from the last week:
From the American Cancer Society: Prevalence and predictors of cancer‐related worry and associations with health behaviors in adult survivors of childhood cancer
From Children’s Cause: Rachel McCallum is a long-term survivor diagnosed with Anaplastic Astrocytoma of the 4th ventricle of the brain stem in 1993. Her experience as a long-term survivor has encouraged her to become an advocate for others like herself who have struggled with the transition from pediatric patient to independent adulthood.
Research from St. Jude suggests that the socioeconomics of families is a significant predictor of whether childhood brain tumor survivors will experience neurocognitive late effects up to a decade after their treatment.
Cell Reports Medicine article purports that a diabetes drug could provide protection to children undergoing radiation for brain tumors.
Scientists reported results of the first frontline clinical trial to use targeted therapy to treat high-risk pediatric Hodgkin lymphoma which showed that the addition of brentuximab vedotin achieved excellent outcomes, reduced side effects, and allowed for reduced radiation exposures.
As part of an effort to ease the processes around pediatric cancer drug development, the FDA and European Medicines Agency on Wednesday unveiled a new template to provide companies with an easier way to seek scientific advice from both agencies.
Upcoming Webinars and Online Opportunities:
CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access this weeks podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):
- Mindy Dykes (Children’s Cancer Research Fund)
- Vickie Buenger (Coalition Against Childhood Cancer)
“How Collaboration Is Advancing Research and Clinical Care in Paediatric Cancer” is a jointly organized webinar co-presented by the National Cancer Research Institute and the International Cancer Research Partnership (ICRP). The webinar will highlight how cancer research funders are currently collaborating to advance paediatric cancer research and clinical care. Join us at 10:00ET on 19 April as the panel discusses these key topics, as well as how to galvanize support for more international collaboration to maximize investments in funding. The webinar is co-chaired by Dr Julia Chisholm (Chair of the NCRI Children’s Group) and Ms Amy Weinstein (Director of Research at US Pediatric Brain Tumor Foundation), with speakers Professor Vickie Buenger – President at US Coalition for Childhood Cancer, USA and Professor Gilles Vassal – Professor of Oncology University Paris-Sud, France.
Mark your calendar for April 27, 2021, the Alliance for Childhood Cancer for the 10th Annual Childhood Cancer Action Days. This virtual event brings our community together to advocate for important childhood cancer issues currently before Congress.
RECORDING: CAC2 Member Danielle Leach (National Brain Tumor Society and the Alliance for Childhood Cancer) presented a special edition of this month’s CAC2 All-Member webinar highlighting the online issues and advocacy training and pre-arranged Zoom meetings with Members of Congress and their staff arranged for Action Day 2021: Action Day 2021: Learn More about How to Advocate Virtually.
RECORDING: ACCELERATE presents Everything you always wanted to know about Developing Drugs for Children with Cancer* (*But were afraid to ask) on March 30, noon EDT.
- CAC2 Childhood Cancer Community News Digest (January 30-February 5)
- CAC2 Childhood Cancer Community News Digest (January 23-29)
- CAC2 Childhood Cancer Community News Digest (January 16-22)
- CAC2 Executive Director Position Now Open!
- CAC2 Webinar–Not For Profit Financial Matters: A Deep Dive into the 990