CC Community News Digest (October 12-18)

Assorted news from the last week:

This year’s Cancer Grand Challenges (funded by Cancer Research UK and the National Cancer Institute) include a category for Solid Tumors in Children.

Contract Research Organization PRA Health Sciences published a white paper encouraging industry sponsors to identify, seek out, and partner with patient organizations as they try to meet the demands of the RACE for Children Act.

OncoHeroes BioSciences announced that its therapeutic Volasertib received Orphan Drug Designation (ODD) from the U.S. Food and Drug Administration (FDA) to treat pediatric rhabdomyosarcoma and other rare soft tissue sarcomas.

Cooking up Change launched this  video and a new website that demand better environmental policies from elected officials for a less toxic environment that could reduce the incidence of cancer in children.  It also highlights the work of organizations and initiatives (like the Childhood Cancer Prevention Initiative) that are making that change happen.

On October 14, 2020, the Food and Drug Administration extended the approval of pembrolizumab (KEYTRUDA®, Merck Sharp & Dohme Corp.) for the following indications for adult patients with relapsed or refractory classical Hodgkin lymphoma (cHL) and for pediatric patients with refractory cHL, or cHL that has relapsed after 2 or more lines of therapy.


Upcoming webinars and Online Opportunities:

Clouds centering on the life of Zach Sobiech debuts on Disney+ on Oct. 16.  Read the back story and get CAC2 Member Laura Sobiech’s perspective on making the movie of Zach’s life, and view the trailer.

Dr Michael Scheurer, of Baylor College of Medicine, who leads the epidemiological study of pediatric cancer, TheReasonsWhy.Us ( will give a family-oriented webinar on Thursday October 22, 2pm ET entitled “What Caused This?” about global causes of pediatric and AYA cancers.

Neuroblastoma Parent Global Symposium on November 6th and 7th, 2020 offers a free, online, 2-day event that will bring together families directly affected by neuroblastoma around the world with those who work to treat, help and support them.  Researchers and clinicians will lead sessions to provide information on current treatments around the world and share emerging therapies. Registration is now open to reserve a space for this free event!

SIOP 2019 Webcasts are now available online for free.