CAC2 Childhood Cancer Community News Digest (May 23-30)

Assorted News from Last Week:

The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers.

On May 20, 2022, the Food and Drug Administration approved azacitidine (Vidaza, Celgene Corp.) for pediatric patients with newly diagnosed juvenile myelomonocytic leukemia (JMML).

From Forbes:  Young adults who have survived leukemia have higher mortality rates than people in the general population, even for decades after their treatment, according to a new study.

New research provides insights into some of the genetic characteristics resulting in the development of relapse in patients with Wilms tumor (nephroblastoma), the most common type of pediatric cancer of the kidney. The study identified mutations in key genes, including two that had not been previously recognized in Wilms tumor, which offers promise for improving ways to better identify patients who are at risk of relapse and tailoring therapies for these patients.

Hispanic children with high-risk neuroblastoma had worse survival outcomes than other children with the disease despite receiving treatment on clinical trials with standardized protocols, according to study results.

Upcoming Webinars, Online Opportunities, and Meetings:

The 20th International Symposium on Pediatric Neuro-Oncology, ISPNO 2022 from 12 – 15 June 2022, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) in Hamburg, Germany, from 11 – 12 June 2022.  Registration link.

Prime Stage for bringing awareness to childhood cancer and inspiring youth with their upcoming youth production based on Alex Scott (inspiration for CAC2 Member Alex’s Lemonade Stand Foundation), The Amazing Lemonade Girl, June 16-19 in Pittsburgh, PA.  The play, based on a book by Liz and Jay Scott, shows how a single person can change the world one act, or even one cup at a time.

Leukemia & Lymphoma Society will host a free virtual education program for families and caregivers of pediatric blood cancer patients on June 15 at 5:00 CDT. Participants will learn about immunotherapy options for children with Leukemia and Lymphoma. Participants will gain a better understanding about some of the most recent innovations in treating the most common leukemias and lymphomas of childhood. Attendees will be introduced to the field of immunotherapy in cancer treatment and gain insight into how novel therapies are conceived, tested and approved.  Registration link.

Recordings of Recent Past Events:

Danielle Riberio from interviewed Coalition Against Childhood Cancer as part of their ‘ Talks With…’ podcast.

Take Action:

During June, on Childhood Cancer International social media wants to share stories, testimonials and activities regarding childhood cancer survivorship. If you have content that would like to share with us please send it to