CC Community News Digest (September 27-October 3)

Assorted news from last week:

CAC2 Member Mary Beth Collins, highlights the importance of Childhood Cancer License Plates, how they amplify awareness efforts, the advocacy required to create these plates and CAC2’s Childhood Cancer License Plate awareness effort.

Gavin Lindberg had an Opinion Piece published in The Washington Post titled “The US Should Invest in Children’s Health.”

From the New England Journal of Medicine correspondence: Lorlatinib in a Child with ALK-Fusion–Positive High-Grade Glioma

Mount Sinai researchers have developed a therapy that shows promise against acute myeloid leukemia.

A new study based on patient samples collected over the past decade by the Morgan Adams Foundation Pediatric Brain Tumor Research Program at the University of Colorado School of Medicine sheds light on pediatric radiation-induced high-grade gliomas (RIGs) are caused by cranial radiation therapy for other cancers and account for nearly 4% of all childhood brain tumor deaths.

Improving outcomes for children with cancer at NCI (part of the NCI 50 Years Celebration).

Upcoming Webinars and Online Opportunities:

CAC2 will host their October All-Member webinar on October 20 at noon ET.  Panelists include CAC2 Member Kim Buff (Momcology), Heather Held (Pediatric Brain Tumor Foundation), and Robyn Dillon (Children’s Hospital of Richmond).  They will share information on their successes in connecting with children and families who can benefit from an organization’s support services.  Register for this webinar at: Finding Families to Serve.

A listening session to provide the community a forum for responding to the summary, including what may be missing or need modification, and provide input on how ARPA-H can engage effectively with stakeholders will be held on October 20, 2021, from 2:30 – 4:00 pm ET. Comments or questions may be submitted to in advance of the session.   White House Office of Science and Technology Policy & National Institutes of Health ARPA-H Listening and Feedback Session.

 

CAC2 member Janet Demeter (Jack’s Angels)  hosts Childhood Cancer Talk Radio.  Follow that link to access past episodes.  CAC2 Member Dena Sherwood (Arms Wide Open Childhood Cancer Foundation) was the featured guest last week.

The FDA Oncology Center of Excellence presented Conversations on Cancer – The Future of Childhood Cancer Drug Development: Is the Sky the Limit? This informal panel discussion explored personal perspectives from survivors, clinicians, caregivers, and pediatric patient advocates on the impact of childhood cancer

CureFest LiveStream

Night of Lights LiveStream

A public webinar, hosted by the CCDI Engagement Committee, provided an overview of CCDI, including foundational goals and vision, as well as an update on two programs within CCDI, the National Childhood Cancer Registry and the Molecular Characterization Protocol.

The second season of Sanjay Gupta’s podcast “Chasing Life” will kick off on September 7 by delving into the topic of pediatric cancer.  You can access the episode here:  Chasing a Cure.

 

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