News & Updates

CC Community News Digest (April 26-May 2)

Assorted news from the last week: Thanks to a funding partnership among CAC2 Members, Spada Pediatric Sarcoma Foundation and Sam Day Foundation created the Ewing Sarcoma Research Fund with a starting corpus of $250,000 within the Beat Childhood Cancer Research Consortium. Cicadas and Chemo-Induced Hearing Loss Pediatric Cancer Research Foundation joins Oncoheroes Biosciences on their unique approach to defeat childhood cancer. For children with acute lymphoblastic leukemia (ALL), the type/dose of steroid seems not to be related to adverse psychological reactions (APRs) but may be associated with sleep problems, according to a review published in Psycho-Oncology. AstraZeneca and MSD’s selumetinib has [...] Read more

Liquid Biopsy for Early Cancer Detection in Patients with Cancer Predisposition Syndromes

In April's CAC2 All-Member Webinar, Dr. Brian D. Crompton (pediatric oncologist at Dana Farber/Boston Children's Hospital) and CAC2 Member Greg Harper (Living LFS) presented about the possibilities with emerging technology identifying circulating cancer cells with liquid biopsies, using Li-Fraumeni Syndrome as a case study. The presentation below described the investigation into a liquid biopsy for Li-Fraumeni Syndrome patients and the EDISYN consortium and how nonprofits partnering with medical research centers to help empower patients and families. Read more

Primer on State Cancer Action Plans Training Meeting

The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) are pleased to invite you to a jointly convened online advocacy training meeting focused on State Cancer Action Plans.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies to help inform and guide communities in the fight against cancer. Primer on State Cancer Action Plans Click above to register (Zoom details to follow) Tuesday, May 11, 2021 7:00-8:30 pm ET 6:00 CT, 5:00 MT, 4:00PT Currently, only 21 [...] Read more

CC Community News Digest (April 12-25)

Assorted news from the last week: A recent student from the Childhood Cancer Survivorship Study that indicates that sixty‐four percent of survivors reported worrying about subsequent malignancy, that 45% reported worrying about physical problems related to cancer, and that 33% reported worrying about relapse. This Journal of Clinical Oncology article addresses neurocognitive late effects in pediatric cancer survivors and explores five broad intervention domains:  compensatory methods, pharmacologic interventions, in-person cognitive remediation, computerized approaches, and physical activity interventions. Treatment with an oncolytic immunovirotherapy alone or with radiation appeared safe and effective in a phase I study of children and adolescents with [...] Read more

Registration Open: CAC2 2021 Annual Summit

Registration is now open for CAC2’s 2021 Annual Summit, taking place virtually Thursday, June 24th and Friday, June 25th.  This year we will meet two consecutive afternoons on Zoom.  The CAC2 Meetings Team has designed a robust program that will balance expert content presentations with opportunities for active engagement for attendees. We will kick off the first day at noon ET with a session welcoming New Members and giving them the chance to “meet & greet” each other and learn how to engage the many resources and opportunities available to CAC2 members.  The afternoon will also include the members-only Business […]

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CC Community News Digest (March 29-April 11)

Assorted news from the last week: From the American Cancer Society:  Prevalence and predictors of cancer‐related worry and associations with health behaviors in adult survivors of childhood cancer From Children’s Cause:  Rachel McCallum is a long-term survivor diagnosed with Anaplastic Astrocytoma of the 4th ventricle of the brain stem in 1993.  Her experience as a long-term survivor has encouraged her to become an advocate for others like herself who have struggled with the transition from pediatric patient to independent adulthood. Research from St. Jude suggests that the socioeconomics of families is a significant predictor of whether childhood brain tumor survivors […]

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Childhood Cancer Advocacy: Action Day 2021

In April's Special Edition CAC2 All-Member Webinar CAC2 Member Danielle Leach (National Brain Tumor Society and the Alliance for Childhood Cancer) highlighted the opportunity for online issues and advocacy training and pre-arranged Zoom meetings with Members of Congress and their staffs.  Action Day 2021 promises to be very exciting. Thanks to a fully virtual setting, more advocates than ever can participate in effective, meaningful interactions with members of Congress and their staff.  Please register to participate in Action Day activities and advocate virtually for the pediatric cancer community. Action Day Registration Training, April 20, 1:00-3:00 ET Action Day Virtual Hil [...] Read more

Presenting Mandy Spielvogle Powell, CAC2 Managing Director

By Guest Blogger CAC2 President Vickie Buenger At our January 2020 board retreat in Philadelphia, the CAC2 Board of Directors began what will ultimately be an 18-month leadership transition, carefully designed to ensure long-term sustainability of the organization. In March 2020, we presented our draft succession roadmap to all of you during the All-Member Webinar, and we have made every effort to keep you apprised of this process over the past year. We are now at the 14-month mark of this succession work and have exciting news to share:  We have selected and hired CAC2’s first Managing Director! This thorough, thoughtful process was […]

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How Collaboration is Advancing Research and Clinical Care in Pediatric Cancer

By:  Dr. Lynne Davies, Operations Manager, International Cancer Research Program   It is with great excitement that I write to let you know about the upcoming webinar scheduled for Monday, April 19th at 10am ET, which aims to capture the very essence of why the International Cancer Research Partnership (ICRP) was created.   ICRP is a unique alliance of cancer organizations working together to enhance global collaboration and strategic coordination of research.  This webinar, entitled “How collaboration is advancing research and clinical care in pediatric cancer,” is jointly organized by ICRP, National Cancer Research Institute Children’s Group and Events team (UK), […]

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CC Community News Digest (March 22-28)

Assorted news from the last week: CNN reporter and recently bereaved dad writes:  the Gabriella Miller Kids First Research Act 2.0 would take money from pharmaceutical companies that behave badly and use it to pay for desperately needed pediatric disease research. The U.S Food and Drug Administration (FDA) has granted Orphan Drug and Rare Pediatric Disease (RPD) Designations for a radiopharmaceutical for Positron Emission Tomography (PET) imaging, the clinical management of pediatric patients with Diffuse Intrinsic Pontine Glioma (DIPG). End-of-Life Care:  A Conversation Recent research tested the efficacy and feasibility of bright light therapy on adolescent cancer survivors. Oncology Nursing [...] Read more