CAC2 Member Blog–NCI Funding: more lies, damn lies and statistics…

  By CAC2 Member Bob Piniewski, People Against Childhood Cancer The recent post on the National Cancer Institute’s Pediatric Cancer Research and Pediatric Cancer-Related Activities Report discussed NCI’s response to a direct statement from Congress saying “intensify pediatric cancer research” and a direct question from Congress asking for a report “on the actions it has taken to implement the research-specific portions of the Caroline Pryce Walker Conquer Childhood Cancer Act“.  NCI essentially replied…”we’ve got it covered” and was commended by Congress. I respectfully disagree. Until no child dies from cancer and the cure does not cause significant long-term health effects […]

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CAC2 Member Blog–Childhood Cancer Advocacy and Direction: The Tail Wagging the Dog

  By CAC2 Individual Member Jonathan Agin Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the best approach as a whole? I honestly do not know. I raise the question to suggest simply that it may not be and thus, a hard conversation and internal focus might be necessary. Despite the false and misleading suggestion that is presented by the message that 80 to 85 percent of all children diagnosed […]

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