CAC2 Webinar–The Blue Ribbon Panel Report and Pediatric Cancer

October 3, 2016
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Earlier this year, as part of Vice President Biden’s Cancer Moonshot initiative, the White House established a Blue Ribbon Panel of experts to report on the current challenges and opportunities facing cancer research. In this CAC2 Research Interest Group webinar for September1 2016, CAC2 welcomed Blue Ribbon Panel members Dr. Peter Adamson (Chair of the Children's Oncology Group) and David Arons (CEO of the National Brain Tumor Society) in a discussion of the panel’s recently issued report and its implications for pediatric cancer. https://youtu.be/QGlWWQrcBlo Read more

CAC2 Member Blog–Three Words I Heard from my Pediatric Oncologist that Still Haunt Me

September 28, 2016
Blog Posts, Member Blogs No comments yet

By CAC2 Member Kayla Funk, Open Hands, Overflowing Hearts   The world stopped spinning for a moment. Time beyond the oncology clinic stood still. Though I knew he was right, I refused to believe my doctor and the words coming out of his mouth. “When neuroblastoma progresses through therapy, we are unable to cure it.” I listened, but I ignored him. I was 19 years old and had spent the last 15 months of my life going through gruesome treatments. The cancer should not have grown. “We will try to suppress your disease for as long as possible, but I don’t […]

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CAC2 Member Blog–“Am I Going to Die?” Reflections of a Survivor

August 25, 2016
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By CAC2 Individual Member Angela Lee I remember ‘that day’ like it was yesterday. The sun was shining on a beautiful spring day in Virginia as my mom and I sat quietly in a hospital room waiting for an oncologist to pay us a visit. I was admitted just days before for a series of lab work and tests that reduced me to feeling like a science project. Although I remember that day very clearly, it was 32 years ago that I heard “It’s a form of cancer” followed by my response “Am I going to die?’. On a beautiful [...] Read more

CAC2 Webinar–Basics of a Clinical Trial in Pediatrics: A Sponsor’s Perspective

August 19, 2016
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In this All-Member and all-community webinar for August 2016, CAC2 welcomes Drs. Michael Trigg, Brigid Bradley-Garelik, and Greg Plautz from Bristol-Myers Squib, speaking on the clinical trial process. These three esteemed industry experts provided an overview of the clinical trial process, particularly from an industry-sponsored trial perspective and cover topics such as clinical trial designs, different required FDA phases of drug development, data monitoring committees, general principles of pediatric trials and special considerations of pediatric trials, industry obligations to pediatrics and personalized medicine. This presentation was not recorded. Read more

CAC2 Members Reflections on the National Cancer Moonshot Summit

August 1, 2016
Blog Posts, Member Blogs No comments yet

By CAC2 Member David Frazer, National Pediatric Cancer Foundation “The Moonshot Summit was an event that gathered the principals within the oncology industry under the inspirational leadership of Vice President Biden.   In my opinion, all politics aside, Mr. Biden portrayed the type of leadership necessary to conduct systematic change to defeat cancer.  Historically, he has always been a champion for public health.   The summit was based on collaboration and change, and Mr. Biden facilitated an effective initiative to drive those focus topics. On June 29, the Vice President gathered 300 cancer experts and advocates to Howard University. Of the 14 advocates and foundations […]

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CAC2 Webinar–Cavatica: The Promise of Big Data

July 20, 2016
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In this CAC2 Research Interest Group webinar for July 2016, CAC2 welcomed host Dr. Adam Resnick of the Children's Hospital of Philadelphia, Dr. Javad Nazarian of Children's Nationwide Hospital, and CAC2 member Amanda Haddock (Dragon Masters Foundation) discussing the Cavatica platform and how it can bring pediatric cancer research in line with the adult initiatives. Dr. Reznick presented about Cavatica, an exciting new cloud-based environment for securely storing, sharing and analyzing large volumes of pediatric brain tumor genomics data.  Cavatica will, for the first time, allow doctors, researchers and data scientists unparalleled access to pediatric brain tumor genomic data paired with a [...] Read more

CAC2 Webinar–Non-Profit Driven Pediatric Oncology Drug Development

May 25, 2016
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In this All-Member webinar for May 2016, CAC2 welcomed Dr. Cesare Spadoni, Chairman and Co-Founder of Accelerating Paediatric Oncology Drug Development. Parents and non-profit entities can play a strong role in driving drug development and thus accelerate the availability of more innovative drugs for children with cancer. But to do, so they must adopt new operating models and collaborate more effectively with other stakeholders. https://youtu.be/GZVCYn-Rmek Read more

CAC2 Webinar–Epigenetics, Pharmacogenetics and Pharmacogenomics

April 14, 2016
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In this CAC2 Research Interest Group monthly webinar, presented on April 13, 2016, we welcomed Dr. John Maris, Giulio D'Angio Endowed Professor of Pediatric Oncology at the Children's Hospital of Philadelphia and the Perelman School of Medicine at the University of Pennsylvania.  Dr. Maris shared with us the process of learning causations, mutations, and finding targets in childhood cancer. https://youtu.be/pYEoQtK0RqQ Read more

STAR Act Co-Sponsor Map

March 5, 2016
Blog Posts, Community News No comments yet

Thanks to the many-faceted efforts in the childhood cancer community, the STAR Act has reached a tipping point (173 co-sponsors in the House of Representatives as of March 3, 2016).  This is an important milestone in moving the bill through the legislative process.  In March the focus is to push for even more co-sponsors, with a strong emphasis on Members who serve on the Energy & Commerce Committee.  We want as many Members as possible supporting the bill, so that we can move the bill to a successful committee hearing.  This map will help you locate your Representative: Hovering over or clicking each marker will […]

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CAC2 Webinar–Landmark Lightings and Proclamations

February 17, 2016
Collaborative Achievements, Webinars No comments yet
In this All-Member webinar for February 2015, CAC2 welcomed presenters Tony Stoddard (Sophia's Fund) and Neal Rourke (International Individual Member). Tony and Neal presented an interactive webinar to encourage dialogue between our members about Landmark Lightings and Proclamations.  They shared their past successes and techniques to help our members reach awareness goals in their communities. Read more
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