All posts tagged: Awareness

CAC2 Member Blog–New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

By CAC2 Member Jonathan Agin, Max Cure Foundation I frequently speak of viewing childhood cancer like a bicycle wheel with multiple spokes emanating from the hub in the center.  Each spoke represents a problem or area of focus:  drug development, psychosocial care, early detection, survivorship, research funding, access to treatment, financial toxicity.  Etc., etc.  The spokes of the childhood cancer wheel are interwoven.  Participating in groups like CAC2 allows us to see how interconnected everything in childhood cancer really is. With that said, one area has not truly been intertwined with the other spokes.  This is the issue of prevention, and specifically, prevention of childhood cancer.  Rising [...] Read more

CAC2 Webinar–The Canine-Kid Connection

In this All-Member Webinar for November 2016, we provided an overview of the compelling case for studying and treating cancer in canine cancer patients – a model of spontaneously occurring disease - the underlying science, and its potential not only to help us better understand and treat pediatric cancer, but also to accelerate the pediatric cancer drug development process. CAC2 Member Ulrike Szalay of Canines -N-Kids explains:  "As we know too well, cancer is the #1 cause of disease-related death in children in most developed countries. At least 1 in 5 will die from their disease, while the vast majority [...] Read more

CAC2 Member Blog–Three Words I Heard from my Pediatric Oncologist that Still Haunt Me

By CAC2 Member Kayla Funk, Open Hands, Overflowing Hearts   The world stopped spinning for a moment. Time beyond the oncology clinic stood still. Though I knew he was right, I refused to believe my doctor and the words coming out of his mouth. “When neuroblastoma progresses through therapy, we are unable to cure it.” I listened, but I ignored him. I was 19 years old and had spent the last 15 months of my life going through gruesome treatments. The cancer should not have grown. “We will try to suppress your disease for as long as possible, but I don’t […]

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CAC2 Members Reflections on the National Cancer Moonshot Summit

By CAC2 Member David Frazer, National Pediatric Cancer Foundation “The Moonshot Summit was an event that gathered the principals within the oncology industry under the inspirational leadership of Vice President Biden.   In my opinion, all politics aside, Mr. Biden portrayed the type of leadership necessary to conduct systematic change to defeat cancer.  Historically, he has always been a champion for public health.   The summit was based on collaboration and change, and Mr. Biden facilitated an effective initiative to drive those focus topics. On June 29, the Vice President gathered 300 cancer experts and advocates to Howard University. Of the 14 advocates and foundations […]

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CAC2 Webinar–Landmark Lightings and Proclamations

In this All-Member webinar for February 2015, CAC2 welcomed presenters Tony Stoddard (Sophia's Fund) and Neal Rourke (International Individual Member). Tony and Neal presented an interactive webinar to encourage dialogue between our members about Landmark Lightings and Proclamations.  They shared their past successes and techniques to help our members reach awareness goals in their communities. Read more

CAC2 Special Community Webinar–G-CSF, Cancer Stem Cells and Relapsed Neuroblastoma: A New Study Opens Up Questions and Opportunities

During our May All-Member and Community webinar,  Scott Kennedy & Donna Ludwinski of Solving Kids' Cancer moderated for our guest presenter, Dr. Jason Shohet addressed the findings of a new study, "G-CSF Promotes Neuroblastoma Tumorigenicity and Metastasis via STAT3-dependent Cancer Stem Cell Activation" published in the journal Cancer Research that identified a potential link between the use of the ​growth factor's effect on cancer stem-like cells and progression and recurrence of neuroblastoma.  As senior author of the study, Dr. Shohet discussed the relevance of these findings within the current context of neuroblastoma patient care as well as the future treatment implications. Topics covered include: What [...] Read more

CAC2 Member Blog–Curing Childhood Cancer: “My What If?”

By CAC2 Member Amber Larkin, Noah's Light Foundation Last fall, Amber Larkin stepped onto the stage for 18 minutes at the TEDx Orlando event in the Winter Garden Theater. Most of those in attendance had no idea that the contents of those 18 minutes would reshape the way they think about cancer forever. Amber’s compelling story of her son, Noah, his battle with brain cancer and the hope that has resulted from her tireless work to find a cure brought the audience to laughter, to tears and eventually to their feet. We are pleased to share Amber’s inspiring speech with [...] Read more

CAC2 Member Blog–Be A Voice for the Children

By CAC2 Members Dena Sherwood, Arms Wide Open Childhood Cancer Foundation and Mike Gilette, The Truth 365 Tonight, 1/21, at 8 pm ET:  Join forces with over 700 organizations and groups by helping launch the powerful short film, “Be a Voice for the Children.” Produced by the Emmy® Award-Winning team at The Truth 365, this 8-minute video features interviews with 15 young cancer fighters who share their fears, frustrations, dreams and goals. They also tell viewers exactly what they can do to help make childhood cancer research a national priority. This grassroots effort is for the entire childhood cancer community and designed […]

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CAC2 Member Blog–The Power of Color

By CAC2 Member Tony Stoddard, Sophia’s Fund There are four boxes in this picture; each box contains colors, a pink box, a green box, a rainbow colored box, and a gold box. When I asked people what the pink box meant to them most answered, “breast cancer” When I asked about the green box a great deal of people said, “The environment or recycling” When I asked about the rainbow colored box a lot of people replied, “gay rights” When I asked what the gold box meant to them I received answers such as, “I don’t know, or it means […]

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